Millions of cancer survivors walk the planet feeling great, living healthy, enjoying their lives -- most of the time.
Obviously, I can't speak for everyone, but there are enough "members of the club" in my own life that I think it's safe to say, it's mighty hard for those of us who have fought the good fight against the Big C not to live the rest of our lives without that niggling, nagging, nasty little thought that it someday it just might rear its ugly head once again.
Example: Right now, the right side of my neck is bothering me. It's probably just a strained trapezius muscle. But it's the same side as the site of my melanoma, and my doctors are always asking if I have any unusual aches or pains, so naturally that horrible little thought occurs - even though it's for the briefest of moments - that maybe it's something I should worry about.
I'm pretty good at not dwelling on such things for more than a minute, but during a recent visit with my new medical oncologist (not to be confused with my surgical oncologist), I was informed I should keep going with tests, etc. until I hit the five year mark (as opposed to being done at 3 years, as I expected and hoped). As he put it, melanoma, along with lung cancer, are the two most insidious forms of the disease. Melanoma, especially, is known for its "heartbreaking surprises." I'm not sure it was a good idea for the doctor to say this to me, and I chalk it up to his youthful intensity. Of course, I responded with a smile that I had absolutely no intention of being one of his "heartbreaking surprises."
Still, it gives one pause ...
Still, I've been encouraged by so many people to tell my story. And I do think it might help others going through a similar experience to hear how it's gone for someone who has also walked the path.
And then there is thing about me that can't be denied. I write. I have always written. I probably always will write. Journals, poems, short stories, essays, articles, novels. It's a complete love/hate relationship because it's so bloody hard to do, and often I don't even do it all that well - yet I can't seem to not do it! I've tried to stop, but even when I think I've given it up, it comes out in odd little ways, like long Facebook entries. There's no denying it. To anyone who knows me well, it's my identity. I'm a writer.
I apologize, Readers, for once again displaying my angst about starting this book. Wanting badly to do something, and hating the idea of doing it are two tough emotions to reconcile.
But there's one final truth that cannot be denied. My life as a cancer survivor, my life without a nose - it will never be over - not until the day I die. Every morning, every night, every time I time I look in the mirror, I am the woman without a nose. It has become my other identity - my bigger identity even that that as a writer. I never wanted to be Cancer Girl. I said when this whole thing began that I was not going to let it change who I am at heart.
So maybe, just maybe - I have to write this book just to rebalance the scales.
(Postscript: Yes, I cheated and checked Wikipedia for the name of Wagner's original Fat Lady mentioned in my title. No, I'm not that smart and erudite - just resourceful.)
As a "member of the club", I understand your message, loud and clear. I am only one year out, but I know that fear will always be there. I only recently realized that the emotional deadness I've been experiencing is actually stone cold fear - fear that keeps me from engaging with others and with events in my life.
ReplyDeleteI would not have guessed this about you, Jackie, based on all the amazing things you've done in the past year - dance competitions, travel, etc. But I am also not surprised, given what you've been through. Fear is a tricky thing. It serves an important purpose to keep us vigilant, but as you are experiencing, it can destroy our enjoyment of the best things in life. You strike me as a strong woman who will, when you are ready, put the fear in its place, and greet it only in those brief moments when your body does something unusual.
DeleteI find that while we are going through it, there is that adrenalin, the survival instinct, that takes over. But after the surgeries, the treatments, comes the realization: holy shit, I had CANCER. And it could come back. It's a form of PTSD. On the brighter side, once you've been through the post-cancer collapse, it gets a little easier. Except for the check-ups, of course. And the little aches and pains.
DeleteYou are such a role model! I really mean it... by reading you I have come to realize many things and I have found a lot of strength to fight fear in things happening in my life. Thank you! Mariate
ReplyDeleteSending SUMMER LOVE ...
ReplyDelete